Children

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	My name is Anthony. I was born on 24 November 1982 and I have Polymicrogyria with profound deafness. When I was very young I had no feeding problems, I smiled alot and I loved looking at my hands. I first sat up unaided when I was 17 months old, commando crawled at 3 years, established proper crawling at 5 years and was able to feed myself with a spoon by then. I walked my first 5 steps at 6 years of age. I now use sign language - my perceptive language is better than my expressive. I can swim (200 meters unaided!) and I cycle on a 3 wheeled special bike on my own. Over the years I have had lots of therapy. I have been to the Peto Institute in Budapest four times - this both helped me and my mum! I have tried Hyperbaric Oxygen Therapy and although I used to enjoy it it only seemed to increase my appetite and didn't seem to make any difference to my spasticity or physical development. I also do Shiatsu with a nice man who has adapted his method especially for me. Finally, I have had Botox injections to reduce spasticity in my hamstrings, achilles tendons and in my right arm. These proved to be very successful. I eat lots of fruit and yoghurt, protein and carbohydrates. I am not on any medication.
	Hi I'm Corey. I was born on the 9-01-98 and tried mum & dad's patience a lot crying and feeding constantly day/night!!. Mum noticed first that I still had clenched hands at 5 months, but I wasn’t diagnosed until I was 15months with frontal pachygyria. I love people, especially my mum, then daddy and my big brother and sister Lotty and Aaron. I have just started to sit on my own and its great fun looking around at every thing. Eating is not that good, I oral feed mushy foods and have started to chew soft foods grapes. Bananas are my fav'. I can hold my beaker and tip it to drink. I go swimming have therapy and also have nursery once a week. Sleeping through the night was a big one. I didn’t manage that until Dec 99 mum looked tied so I thought it was a good idea. I have very good health with no fits to date, but I do suffer the old constipation yuck! I’m went to GOSH in May 2000 for a 2^nd MRI scan and was later given the diagnosis of pachycortex which is very rare type of lissencephaly (picture updated April 2003)
	Hello, my name is Katie. I was born on 27 August 1997. I have Isolated Lissencephaly Sequence which means that my brain didn't develop correctly. I have a very a happy disposition and I love people around me. I feed orally and I am able to hold my cup which is a great help to my mum and dad. I sometimes have fits so I take Epilim which seems to help. I always sleep through the night and am a very good little girl. I get physiotherapy, some occupational therapy and hydrotherapy most weeks and I show some progress albeit very slow! Recently I have learned to float all on my own in the swimming pool.
	Hamish Hockey was born on 14th February 1994 and was diagnosed with isolated lissencephaly sequence after a magnetic resonance image scan of his brain. Hamish needs help with all the activities of daily life. Hamish lives in Surrey with Fiona his Mum, who has now taken on the job of contact person for the Liss Contact Group, Alan his dad, Euan his younger brother and Morag, his naughty little sister. The highlight of Hamish's life so far was the two years he spent in Ghana West Africa where his dad was working supervising the construction of a water supply scheme. Hamish enjoyed travelling by plane and loved the hot weather with no winters of coughs, colds and chest infections to worry about. Living beside the River Volta Hamish got lots of natural hydrotherapy in the river with his helper Rita who is helping him to sit in the tree house in the photo. Returning to the UK in October 1998 Hamish is now settled in Surrey and enjoys attending the Ridgeway school in Farnham where he gets physio and hydro and is assisted by his one to one helper, Lynne, whose welsh accent Hamish just loves.
	Oliver has ILS (type 1 lissencephaly) and is now 6½ years old. At the moment things are going OK.. His fits for most of the time seem to be well controlled and despite the fact that he is on Clonazapam, Vigabatrin, Phenytoin and homeopathic remedies, he seems to be doing quite well. He still not able to sit unaided, but his head control does seem to have improved slightly. His school has been marvellous, trying to incorporate a communication aid, Alphatalker, with very basic messages. They have recently discovered that Oliver operates this much better by using his feet rather than his hands. Most of the time Oliver is a very happy boy, lots of giggles and smiles and his understanding of what is going on seems to have improved. Although he did not have a very good time last year from August onwards. He contracted pneumonia twice, which had a knock on effect with his fits. He had to have his medication increased to upper limits, resulting in the incorporation of an additional drug, Phenytoin. (May 2000)
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