Children

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	Hello, I am Finlay Maarten McAlpine, born on 28/07/2001. I have bilateral perisylvian polymicrogyria and microcephaly. I am a very happy, sociable boy and love to be in the centre of everyone’s attention. I have some trouble sitting and cannot yet crawl or walk without help, but I am working really hard on it. I love playing in my standing frame. With some help from mum or dad I like chasing my big brother or playing football. I also love my car, as you can see. I like to be active and watch my friends play. In my mainstream nursery I get lots of cuddles from all my healthy friends and they help me to play just like them. I also go to a special assessment nursery two days a week where there is a soft play area, a hydro-pool and lots of people to help me with communication and motor skills.
	Madison was born on March 9/04 at 24 weeks gestation weighing 1 pound 6 ounces and was 11 inches long. Our journey has been long and hard. Being such a preemie the journey is never easy. And being a single mom has made it even more difficult. In mid June/04 Madison was diagnosed with Pachygyria and later that diagnosis was changed to Agyria otherwise know as Lissencephaly. I'm still waiting to find out what type of Lissencephaly she has. The internet has been a wonderful source of information. It has taught me more than any Dr. has been able to tell me. Madison is now almost 6 months old. She came home from the hospital on Aug.3. Since then I've had to call 911 3 times as she has started to have tonic/clonic seizures and recently since she was started on Phenobarbitol she is not able to feed orally as she cannot manage her secretions. So right now she back in the hospital. The next step is a G or a J tube. They would like to see her a little bit bigger and more stable before they consider the surgery. She now weighs 7 and a half pounds. Madison is also hearing impaired she can here but it seems to only be high pitch and louder voices. She does not track but appears to see. I'm waiting to take her in to see the eye specialist.
	Leon was born on 6th June 2003.He is gorgeous, sweet, happy, funny, vocal,and generally content. Perfect! His only disadvantage is his Lissencephaly which has caused severe learning disabilities and epilepsy. Leon attends the nursery class at Mayfield Special School in Chorley, Lancs where he is very settled and gets lots of stimulation and excellent care. Generally Leon's health is good. He seems to be prone to coughs and colds, but thankfully (so far) his epilepsy has been controlled with medication. I would like to commend the services provided by my local Primary Care Trust, my Council and Education Authority for everything that has been done to help me to take good care of Leon. He's my little superstar.
	Hi my name is Samuel. I was born on the 23 March 2007 and I'm one of two twins. I was diagnosed with Isolated Lissencephaly Sequence. My mum says I'm a good baby, not like my 2 brothers William and Joseph(7) as I very rarely cry and sleep though the night. I feed well with solids, but I have a hard time drinking from my bottle, so my mum thickens it up for me. After escaping from hospital, I'm making good progress. I'm learning to control my head and I can sit up straight with a little help from my family.
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